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Messages - jaybird44

#16
Men's soccer / Re: UAA soccer 2021
October 16, 2021, 12:54:31 PM
A few quick thoughts on last night's NYU/WashU tilt...

NYU was the better team last night, and perhaps every night...the Violets are physical, they have skill, and they were quicker than WashU.  That was readily apparent when WashU's methodical passing game approach to its offense was more often scrapped in favor of the long-pass launches from the backs.  NYU effectively suffocated WashU's intent to move the ball skillfully upfield.

As a result of all that, WashU fell into the trap of hoping that the officials would help them level the playing field.  Lots of on-field complaining, and perhaps for good reason.  But, that gets in the way of trying to find a way on the field to be more creative...or to at least get in the penalty area with regularity to where you might get a penalty called on the vigorous Violets.

And the officiating crew was clearly not up to the challenge of legislating a match in which both teams like the rough-and-tumble and the chirping from players that sometimes goes with that.  I feel for the crew, because that was a very difficult match to officiate.  My biggest issue was the frequent stoppages of play, so the lead official could scold players like he was a father or a teacher trying to plead and implore them to change their behavior.  That resulted in a scheduled 90-minute match to go well past two hours--without overtime.  At some point, the lead official needed to stop scolding and issue more yellow cards.  That would've eventually caused a 1 + 1 = red card situation or two that would have gotten the players' attention and desired behavior modification, IMHO.
#17
On a side note:  I am currently fundraising for Rett syndrome through my Rett Gets Rocked 2021: 100 + ONE event.  I am going to attempt to run/walk 100 miles in 32 hours, from 9 a.m. October 23 to 5 p.m. October 24 at WashU's Francis Olympic Field.  Proceeds go to the International Rett Syndrome Foundation and the Rett Spectrum Clinic at WashU's School of Medicine in St. Louis Children's Hospital.

If you would like to make a donation, you may use this link:

https://rettracers2021.funraise.org/fundraiser/jay-murry

We are close to a cure...gene-replacement therapy research is well underway across the country, to correct the gene mutation in the brain that causes Rett syndrome.  Trofinitide, a drug in its final round of clinical trials before FDA review, has shown promise in limiting the frequent seizures that are a part of Rett.

Rett syndrome manifests itself typically when a child is between 6-18 months of age.  Just when a child is learning how to walk and talk, Rett acts like Lucy when she pulls the ball away from Charlie Brown.  Only Rett doesn't allow a child to get up and try again.  Children regress sharply to wheelchairs or assistance with walking, and the ability to talk is taken away, with no ability to even move hands for sign lianguage. 

One in 10,000 girls develop Rett syndrome, and it is even rarer in boys due to the mutation occurring on the X chromosome.  I don't have any family members with Rett, but I have become friends with many families who are dealing with Rett.  It is my fourth year of doing an ultramarathon fundraiser, and I have raised nearly $16,000 to date.

It is the cause in which I pick up sword and shield every year.  I hope yon can join me in the quest for a cure of Rett syndrome.

Jay Murry
Play-By-Play Announcer
Washington University in St. Louis
#18
A cursory look at the surface of the Wheaton-WashU game prompts me to believe that Wheaton may be a bit off its '19 performance, and WashU appears to be a bit better in some areas via the eye test, than it was in '19.  I'm not sure if the alleged Wheaton drop and alleged WashU rise are significant enough to produce a Bears victory.

I do remember watching the 2019 game in which Wheaton absolutely pummeled WashU.  No, more like punished the Bears on every snap for being on the same field.  Such was the size of the chip and the muscularity in which the Thunder imposed its will.  Truly at that time the Thunder appeared to be a strong contender for getting to the D3 title game.

Given that, a lot of water has flowed under the football bridge since then.  I am quietly confident that the Bears will compete with Wheaton.  I like our secondary, linebacking corps, QB play, WR depth, placekicking, and the RB rotation that is physical when needed.  There are quite a few seniors and a sprinkling of grad students that seem to be rising to the notion that this is their time to make a mark after last year was taken away by COVID. 

Can they rise to the occasion in front of a big home crowd Saturday night and get a home win against nationally-ranked Wheaton for the second straight time?  I think so...but I view things with just a hint of rose-color through my eyeglasses.

Should be a helluva lot of fun however the game unfolds...
#19
Men's soccer / Re: CCIW
September 12, 2021, 12:04:26 AM
It is annoying to have to wear a mask while broadcasting, but it's a campus rule to have one on when indoors.  I especially get aggravated when I have to wear my glasses near the end of my nose to keep them from fogging up while I'm talking.

Today I did allow my nose to leave the mask for a few moments of fresh-air enjoyment.  When no one was looking or in the press box cubicle with me.  Such is the way of life in St. Louis County, which is much more draconian than St. Charles County--the neighboring county in which I live.
#20
Men's soccer / Re: CCIW
September 11, 2021, 09:36:46 PM
If WashU continues to play with a hungry vibe, I could see a rematch occurring between the Bears and North Park.  Right now, WashU has to be mindful not to lay an egg at Hope Wednesday...but I am very impressed and encouraged by the team's performances so far.
#21
Region 9 women's basketball / Re: UMAC
October 29, 2020, 11:22:49 PM
It seems that I have been the only member of the only (unofficial) fall sport at WashU, with my 100-mile ultramarathon attempt earlier this month to promote the fight for a cure during Rett Syndrome Awareness Month.  That attempt fell a bit short in miles and fundraising, so I'm going into overtime to try and reach $5,000 in donations.

Rett Gets Rocked 50K for $5K will commence Friday, October 30 at 8 pm Central, and end at 8 am Halloween morning.  Counting donations received (thanks to retired WashU men's basketball coach Mark Edwards and his wife Mary, and to Mike McGrath and his  University of Chicago men's basketball program for their donations!) and those yet to be sent and processed, I am at $4,440.53.  Very, very close to my goal...which will fund a researcher's work for a month.  Wouldn't it be cool if he or she cracked the code for a cure of Rett syndrome, on our dime?!

I reached 86 miles in my "Rett Gets Rocked Virtual Ultra Weekend" October 3-4.  I'm very proud of that result, but there's more work to be done.  Proceeds from the event will be split between Rettsyndrome.org (the only national organization spearheading research and providing resources for affected patients and their families) and the Rett Spectrum Clinic--a collaboration between the WashU School of Medicine and St. Louis Children's Hospital.

Rett syndrome is a rare, non-inherited neurological disorder that is caused by a gene mutation in the brain.  It primarily affects girls (1 in every 10,000 girls develop Rett).  It strikes typically when a child is 6-18 months old, and it has the characteristics of ALS, autism, epilepsy, and Parkinson's...all rolled into one sinister disorder.  It takes away the child's ability to move and communicate. 

In essence, Rett does to a child what Lucy in the "Peanuts" comic strip does to Charlie Brown when he tries to kick the football that she is holding.  The only difference is that Charlie Brown can get back up to try again.  Those who are afflicted with Rett syndrome don't get another chance to enjoy a vibrant life.

Researchers are working to re-engineer the gene mutation that turns on Rett, so it can be forever turned off.  Four drug therapies are in the FDA review pipeline, with one (trofanitide) one level away from review.  And, iPad tablets with retinal scan technology are giving those with Rett a voice they haven't had since they were toddlers.

The full court press on Rett is paying off.  You can help keep the pressure on Rett, by going to my Rett Racers donation page:  https://rettracer.everydayhero.com/us/rett-gets-rocked-2020

Thanks for your time and consideration, and hopefully there will be basketball to play and broadcast at the start of 2021!

Jay Murry
Play-By-Play Announcer, Washington University in St. Louis
Event Director, Rett Gets Rocked 50K for $5K
#22
Region 10 women's basketball / Re: Northwest Conference
October 29, 2020, 11:21:27 PM
It seems that I have been the only member of the only (unofficial) fall sport at WashU, with my 100-mile ultramarathon attempt earlier this month to promote the fight for a cure during Rett Syndrome Awareness Month.  That attempt fell a bit short in miles and fundraising, so I'm going into overtime to try and reach $5,000 in donations.

Rett Gets Rocked 50K for $5K will commence Friday, October 30 at 8 pm Central, and end at 8 am Halloween morning.  Counting donations received (thanks to retired WashU men's basketball coach Mark Edwards and his wife Mary, and to Mike McGrath and his  University of Chicago men's basketball program for their donations!) and those yet to be sent and processed, I am at $4,440.53.  Very, very close to my goal...which will fund a researcher's work for a month.  Wouldn't it be cool if he or she cracked the code for a cure of Rett syndrome, on our dime?!

I reached 86 miles in my "Rett Gets Rocked Virtual Ultra Weekend" October 3-4.  I'm very proud of that result, but there's more work to be done.  Proceeds from the event will be split between Rettsyndrome.org (the only national organization spearheading research and providing resources for affected patients and their families) and the Rett Spectrum Clinic--a collaboration between the WashU School of Medicine and St. Louis Children's Hospital.

Rett syndrome is a rare, non-inherited neurological disorder that is caused by a gene mutation in the brain.  It primarily affects girls (1 in every 10,000 girls develop Rett).  It strikes typically when a child is 6-18 months old, and it has the characteristics of ALS, autism, epilepsy, and Parkinson's...all rolled into one sinister disorder.  It takes away the child's ability to move and communicate. 

In essence, Rett does to a child what Lucy in the "Peanuts" comic strip does to Charlie Brown when he tries to kick the football that she is holding.  The only difference is that Charlie Brown can get back up to try again.  Those who are afflicted with Rett syndrome don't get another chance to enjoy a vibrant life.

Researchers are working to re-engineer the gene mutation that turns on Rett, so it can be forever turned off.  Four drug therapies are in the FDA review pipeline, with one (trofanitide) one level away from review.  And, iPad tablets with retinal scan technology are giving those with Rett a voice they haven't had since they were toddlers.

The full court press on Rett is paying off.  You can help keep the pressure on Rett, by going to my Rett Racers donation page:  https://rettracer.everydayhero.com/us/rett-gets-rocked-2020

Thanks for your time and consideration, and hopefully there will be basketball to play and broadcast at the start of 2021!

Jay Murry
Play-By-Play Announcer, Washington University in St. Louis
Event Director, Rett Gets Rocked 50K for $5K
#23
It seems that I have been the only member of the only (unofficial) fall sport at WashU, with my 100-mile ultramarathon attempt earlier this month to promote the fight for a cure during Rett Syndrome Awareness Month.  That attempt fell a bit short in miles and fundraising, so I'm going into overtime to try and reach $5,000 in donations.

Rett Gets Rocked 50K for $5K will commence Friday, October 30 at 8 pm Central, and end at 8 am Halloween morning.  Counting donations received (thanks to retired WashU men's basketball coach Mark Edwards and his wife Mary, and to Mike McGrath and his  University of Chicago men's basketball program for their donations!) and those yet to be sent and processed, I am at $4,440.53.  Very, very close to my goal...which will fund a researcher's work for a month.  Wouldn't it be cool if he or she cracked the code for a cure of Rett syndrome, on our dime?!

I reached 86 miles in my "Rett Gets Rocked Virtual Ultra Weekend" October 3-4.  I'm very proud of that result, but there's more work to be done.  Proceeds from the event will be split between Rettsyndrome.org (the only national organization spearheading research and providing resources for affected patients and their families) and the Rett Spectrum Clinic--a collaboration between the WashU School of Medicine and St. Louis Children's Hospital.

Rett syndrome is a rare, non-inherited neurological disorder that is caused by a gene mutation in the brain.  It primarily affects girls (1 in every 10,000 girls develop Rett).  It strikes typically when a child is 6-18 months old, and it has the characteristics of ALS, autism, epilepsy, and Parkinson's...all rolled into one sinister disorder.  It takes away the child's ability to move and communicate. 

In essence, Rett does to a child what Lucy in the "Peanuts" comic strip does to Charlie Brown when he tries to kick the football that she is holding.  The only difference is that Charlie Brown can get back up to try again.  Those who are afflicted with Rett syndrome don't get another chance to enjoy a vibrant life.

Researchers are working to re-engineer the gene mutation that turns on Rett, so it can be forever turned off.  Four drug therapies are in the FDA review pipeline, with one (trofanitide) one level away from review.  And, iPad tablets with retinal scan technology are giving those with Rett a voice they haven't had since they were toddlers.

The full court press on Rett is paying off.  You can help keep the pressure on Rett, by going to my Rett Racers donation page:  https://rettracer.everydayhero.com/us/rett-gets-rocked-2020

Thanks for your time and consideration, and hopefully there will be basketball to play and broadcast at the start of 2021!

Jay Murry
Play-By-Play Announcer, Washington University in St. Louis
Event Director, Rett Gets Rocked 50K for $5K
#24
It seems that I have been the only member of the only (unofficial) fall sport at WashU, with my 100-mile ultramarathon attempt earlier this month to promote the fight for a cure during Rett Syndrome Awareness Month.  That attempt fell a bit short in miles and fundraising, so I'm going into overtime to try and reach $5,000 in donations.

Rett Gets Rocked 50K for $5K will commence Friday, October 30 at 8 pm Central, and end at 8 am Halloween morning.  Counting donations received (thanks to retired WashU men's basketball coach Mark Edwards and his wife Mary, and to Mike McGrath and his  University of Chicago men's basketball program for their donations!) and those yet to be sent and processed, I am at $4,440.53.  Very, very close to my goal...which will fund a researcher's work for a month.  Wouldn't it be cool if he or she cracked the code for a cure of Rett syndrome, on our dime?!

I reached 86 miles in my "Rett Gets Rocked Virtual Ultra Weekend" October 3-4.  I'm very proud of that result, but there's more work to be done.  Proceeds from the event will be split between Rettsyndrome.org (the only national organization spearheading research and providing resources for affected patients and their families) and the Rett Spectrum Clinic--a collaboration between the WashU School of Medicine and St. Louis Children's Hospital.

Rett syndrome is a rare, non-inherited neurological disorder that is caused by a gene mutation in the brain.  It primarily affects girls (1 in every 10,000 girls develop Rett).  It strikes typically when a child is 6-18 months old, and it has the characteristics of ALS, autism, epilepsy, and Parkinson's...all rolled into one sinister disorder.  It takes away the child's ability to move and communicate. 

In essence, Rett does to a child what Lucy in the "Peanuts" comic strip does to Charlie Brown when he tries to kick the football that she is holding.  The only difference is that Charlie Brown can get back up to try again.  Those who are afflicted with Rett syndrome don't get another chance to enjoy a vibrant life.

Researchers are working to re-engineer the gene mutation that turns on Rett, so it can be forever turned off.  Four drug therapies are in the FDA review pipeline, with one (trofanitide) one level away from review.  And, iPad tablets with retinal scan technology are giving those with Rett a voice they haven't had since they were toddlers.

The full court press on Rett is paying off.  You can help keep the pressure on Rett, by going to my Rett Racers donation page:  https://rettracer.everydayhero.com/us/rett-gets-rocked-2020

Thanks for your time and consideration, and hopefully there will be basketball to play and broadcast at the start of 2021!

Jay Murry
Play-By-Play Announcer, Washington University in St. Louis
Event Director, Rett Gets Rocked 50K for $5K
#25
It seems that I have been the only member of the only (unofficial) fall sport at WashU, with my 100-mile ultramarathon attempt earlier this month to promote the fight for a cure during Rett Syndrome Awareness Month.  That attempt fell a bit short in miles and fundraising, so I'm going into overtime to try and reach $5,000 in donations.

Rett Gets Rocked 50K for $5K will commence Friday, October 30 at 8 pm Central, and end at 8 am Halloween morning.  Counting donations received (thanks to retired WashU men's basketball coach Mark Edwards and his wife Mary, and to Mike McGrath and his  University of Chicago men's basketball program for their donations!) and those yet to be sent and processed, I am at $4,440.53.  Very, very close to my goal...which will fund a researcher's work for a month.  Wouldn't it be cool if he or she cracked the code for a cure of Rett syndrome, on our dime?!

I reached 86 miles in my "Rett Gets Rocked Virtual Ultra Weekend" October 3-4.  I'm very proud of that result, but there's more work to be done.  Proceeds from the event will be split between Rettsyndrome.org (the only national organization spearheading research and providing resources for affected patients and their families) and the Rett Spectrum Clinic--a collaboration between the WashU School of Medicine and St. Louis Children's Hospital.

Rett syndrome is a rare, non-inherited neurological disorder that is caused by a gene mutation in the brain.  It primarily affects girls (1 in every 10,000 girls develop Rett).  It strikes typically when a child is 6-18 months old, and it has the characteristics of ALS, autism, epilepsy, and Parkinson's...all rolled into one sinister disorder.  It takes away the child's ability to move and communicate. 

In essence, Rett does to a child what Lucy in the "Peanuts" comic strip does to Charlie Brown when he tries to kick the football that she is holding.  The only difference is that Charlie Brown can get back up to try again.  Those who are afflicted with Rett syndrome don't get another chance to enjoy a vibrant life.

Researchers are working to re-engineer the gene mutation that turns on Rett, so it can be forever turned off.  Four drug therapies are in the FDA review pipeline, with one (trofanitide) one level away from review.  And, iPad tablets with retinal scan technology are giving those with Rett a voice they haven't had since they were toddlers.

The full court press on Rett is paying off.  You can help keep the pressure on Rett, by going to my Rett Racers donation page:  https://rettracer.everydayhero.com/us/rett-gets-rocked-2020

Thanks for your time and consideration, and hopefully there will be basketball to play and broadcast at the start of 2021!

Jay Murry
Play-By-Play Announcer, Washington University in St. Louis
Event Director, Rett Gets Rocked 50K for $5K
#26
It seems that I have been the only member of the only (unofficial) fall sport at WashU, with my 100-mile ultramarathon attempt earlier this month to promote the fight for a cure during Rett Syndrome Awareness Month.  That attempt fell a bit short in miles and fundraising, so I'm going into overtime to try and reach $5,000 in donations.

Rett Gets Rocked 50K for $5K will commence Friday, October 30 at 8 pm Central, and end at 8 am Halloween morning.  Counting donations received (thanks to retired WashU men's basketball coach Mark Edwards and his wife Mary, and to Mike McGrath and his  University of Chicago men's basketball program for their donations!) and those yet to be sent and processed, I am at $4,440.53.  Very, very close to my goal...which will fund a researcher's work for a month.  Wouldn't it be cool if he or she cracked the code for a cure of Rett syndrome, on our dime?!

I reached 86 miles in my "Rett Gets Rocked Virtual Ultra Weekend" October 3-4.  I'm very proud of that result, but there's more work to be done.  Proceeds from the event will be split between Rettsyndrome.org (the only national organization spearheading research and providing resources for affected patients and their families) and the Rett Spectrum Clinic--a collaboration between the WashU School of Medicine and St. Louis Children's Hospital.

Rett syndrome is a rare, non-inherited neurological disorder that is caused by a gene mutation in the brain.  It primarily affects girls (1 in every 10,000 girls develop Rett).  It strikes typically when a child is 6-18 months old, and it has the characteristics of ALS, autism, epilepsy, and Parkinson's...all rolled into one sinister disorder.  It takes away the child's ability to move and communicate. 

In essence, Rett does to a child what Lucy in the "Peanuts" comic strip does to Charlie Brown when he tries to kick the football that she is holding.  The only difference is that Charlie Brown can get back up to try again.  Those who are afflicted with Rett syndrome don't get another chance to enjoy a vibrant life.

Researchers are working to re-engineer the gene mutation that turns on Rett, so it can be forever turned off.  Four drug therapies are in the FDA review pipeline, with one (trofanitide) one level away from review.  And, iPad tablets with retinal scan technology are giving those with Rett a voice they haven't had since they were toddlers.

The full court press on Rett is paying off.  You can help keep the pressure on Rett, by going to my Rett Racers donation page:  https://rettracer.everydayhero.com/us/rett-gets-rocked-2020

Thanks for your time and consideration, and hopefully there will be basketball to play and broadcast at the start of 2021!

Jay Murry
Play-By-Play Announcer, Washington University in St. Louis
Event Director, Rett Gets Rocked 50K for $5K
#27
It seems that I have been the only member of the only (unofficial) fall sport at WashU, with my 100-mile ultramarathon attempt earlier this month to promote the fight for a cure during Rett Syndrome Awareness Month.  That attempt fell a bit short in miles and fundraising, so I'm going into overtime to try and reach $5,000 in donations.

Rett Gets Rocked 50K for $5K will commence Friday, October 30 at 8 pm Central, and end at 8 am Halloween morning.  Counting donations received (thanks to retired WashU men's basketball coach Mark Edwards and his wife Mary, and to Mike McGrath and his  University of Chicago men's basketball program for their donations!) and those yet to be sent and processed, I am at $4,440.53.  Very, very close to my goal...which will fund a researcher's work for a month.  Wouldn't it be cool if he or she cracked the code for a cure of Rett syndrome, on our dime?!

I reached 86 miles in my "Rett Gets Rocked Virtual Ultra Weekend" October 3-4.  I'm very proud of that result, but there's more work to be done.  Proceeds from the event will be split between Rettsyndrome.org (the only national organization spearheading research and providing resources for affected patients and their families) and the Rett Spectrum Clinic--a collaboration between the WashU School of Medicine and St. Louis Children's Hospital.

Rett syndrome is a rare, non-inherited neurological disorder that is caused by a gene mutation in the brain.  It primarily affects girls (1 in every 10,000 girls develop Rett).  It strikes typically when a child is 6-18 months old, and it has the characteristics of ALS, autism, epilepsy, and Parkinson's...all rolled into one sinister disorder.  It takes away the child's ability to move and communicate. 

In essence, Rett does to a child what Lucy in the "Peanuts" comic strip does to Charlie Brown when he tries to kick the football that she is holding.  The only difference is that Charlie Brown can get back up to try again.  Those who are afflicted with Rett syndrome don't get another chance to enjoy a vibrant life.

Researchers are working to re-engineer the gene mutation that turns on Rett, so it can be forever turned off.  Four drug therapies are in the FDA review pipeline, with one (trofanitide) one level away from review.  And, iPad tablets with retinal scan technology are giving those with Rett a voice they haven't had since they were toddlers.

The full court press on Rett is paying off.  You can help keep the pressure on Rett, by going to my Rett Racers donation page:  https://rettracer.everydayhero.com/us/rett-gets-rocked-2020

Thanks for your time and consideration, and hopefully there will be basketball to play and broadcast at the start of 2021!

Jay Murry
Play-By-Play Announcer, Washington University in St. Louis
Event Director, Rett Gets Rocked 50K for $5K
#28
Region 2 women's basketball / Re: Little East
October 29, 2020, 11:14:22 PM
It seems that I have been the only member of the only (unofficial) fall sport at WashU, with my 100-mile ultramarathon attempt earlier this month to promote the fight for a cure during Rett Syndrome Awareness Month.  That attempt fell a bit short in miles and fundraising, so I'm going into overtime to try and reach $5,000 in donations.

Rett Gets Rocked 50K for $5K will commence Friday, October 30 at 8 pm Central, and end at 8 am Halloween morning.  Counting donations received (thanks to retired WashU men's basketball coach Mark Edwards and his wife Mary, and to Mike McGrath and his  University of Chicago men's basketball program for their donations!) and those yet to be sent and processed, I am at $4,440.53.  Very, very close to my goal...which will fund a researcher's work for a month.  Wouldn't it be cool if he or she cracked the code for a cure of Rett syndrome, on our dime?!

I reached 86 miles in my "Rett Gets Rocked Virtual Ultra Weekend" October 3-4.  I'm very proud of that result, but there's more work to be done.  Proceeds from the event will be split between Rettsyndrome.org (the only national organization spearheading research and providing resources for affected patients and their families) and the Rett Spectrum Clinic--a collaboration between the WashU School of Medicine and St. Louis Children's Hospital.

Rett syndrome is a rare, non-inherited neurological disorder that is caused by a gene mutation in the brain.  It primarily affects girls (1 in every 10,000 girls develop Rett).  It strikes typically when a child is 6-18 months old, and it has the characteristics of ALS, autism, epilepsy, and Parkinson's...all rolled into one sinister disorder.  It takes away the child's ability to move and communicate. 

In essence, Rett does to a child what Lucy in the "Peanuts" comic strip does to Charlie Brown when he tries to kick the football that she is holding.  The only difference is that Charlie Brown can get back up to try again.  Those who are afflicted with Rett syndrome don't get another chance to enjoy a vibrant life.

Researchers are working to re-engineer the gene mutation that turns on Rett, so it can be forever turned off.  Four drug therapies are in the FDA review pipeline, with one (trofanitide) one level away from review.  And, iPad tablets with retinal scan technology are giving those with Rett a voice they haven't had since they were toddlers.

The full court press on Rett is paying off.  You can help keep the pressure on Rett, by going to my Rett Racers donation page:  https://rettracer.everydayhero.com/us/rett-gets-rocked-2020

Thanks for your time and consideration, and hopefully there will be basketball to play and broadcast at the start of 2021!

Jay Murry
Play-By-Play Announcer, Washington University in St. Louis
Event Director, Rett Gets Rocked 50K for $5K
#29
Region 2 women's basketball / Re: NEWMAC
October 29, 2020, 11:13:53 PM
It seems that I have been the only member of the only (unofficial) fall sport at WashU, with my 100-mile ultramarathon attempt earlier this month to promote the fight for a cure during Rett Syndrome Awareness Month.  That attempt fell a bit short in miles and fundraising, so I'm going into overtime to try and reach $5,000 in donations.

Rett Gets Rocked 50K for $5K will commence Friday, October 30 at 8 pm Central, and end at 8 am Halloween morning.  Counting donations received (thanks to retired WashU men's basketball coach Mark Edwards and his wife Mary, and to Mike McGrath and his  University of Chicago men's basketball program for their donations!) and those yet to be sent and processed, I am at $4,440.53.  Very, very close to my goal...which will fund a researcher's work for a month.  Wouldn't it be cool if he or she cracked the code for a cure of Rett syndrome, on our dime?!

I reached 86 miles in my "Rett Gets Rocked Virtual Ultra Weekend" October 3-4.  I'm very proud of that result, but there's more work to be done.  Proceeds from the event will be split between Rettsyndrome.org (the only national organization spearheading research and providing resources for affected patients and their families) and the Rett Spectrum Clinic--a collaboration between the WashU School of Medicine and St. Louis Children's Hospital.

Rett syndrome is a rare, non-inherited neurological disorder that is caused by a gene mutation in the brain.  It primarily affects girls (1 in every 10,000 girls develop Rett).  It strikes typically when a child is 6-18 months old, and it has the characteristics of ALS, autism, epilepsy, and Parkinson's...all rolled into one sinister disorder.  It takes away the child's ability to move and communicate. 

In essence, Rett does to a child what Lucy in the "Peanuts" comic strip does to Charlie Brown when he tries to kick the football that she is holding.  The only difference is that Charlie Brown can get back up to try again.  Those who are afflicted with Rett syndrome don't get another chance to enjoy a vibrant life.

Researchers are working to re-engineer the gene mutation that turns on Rett, so it can be forever turned off.  Four drug therapies are in the FDA review pipeline, with one (trofanitide) one level away from review.  And, iPad tablets with retinal scan technology are giving those with Rett a voice they haven't had since they were toddlers.

The full court press on Rett is paying off.  You can help keep the pressure on Rett, by going to my Rett Racers donation page:  https://rettracer.everydayhero.com/us/rett-gets-rocked-2020

Thanks for your time and consideration, and hopefully there will be basketball to play and broadcast at the start of 2021!

Jay Murry
Play-By-Play Announcer, Washington University in St. Louis
Event Director, Rett Gets Rocked 50K for $5K
#30
Region 1 women's basketball / Re: NESCAC Hoops
October 29, 2020, 11:12:28 PM
It seems that I have been the only member of the only (unofficial) fall sport at WashU, with my 100-mile ultramarathon attempt earlier this month to promote the fight for a cure during Rett Syndrome Awareness Month.  That attempt fell a bit short in miles and fundraising, so I'm going into overtime to try and reach $5,000 in donations.

Rett Gets Rocked 50K for $5K will commence Friday, October 30 at 8 pm Central, and end at 8 am Halloween morning.  Counting donations received (thanks to retired WashU men's basketball coach Mark Edwards and his wife Mary, and to Mike McGrath and his  University of Chicago men's basketball program for their donations!) and those yet to be sent and processed, I am at $4,440.53.  Very, very close to my goal...which will fund a researcher's work for a month.  Wouldn't it be cool if he or she cracked the code for a cure of Rett syndrome, on our dime?!

I reached 86 miles in my "Rett Gets Rocked Virtual Ultra Weekend" October 3-4.  I'm very proud of that result, but there's more work to be done.  Proceeds from the event will be split between Rettsyndrome.org (the only national organization spearheading research and providing resources for affected patients and their families) and the Rett Spectrum Clinic--a collaboration between the WashU School of Medicine and St. Louis Children's Hospital.

Rett syndrome is a rare, non-inherited neurological disorder that is caused by a gene mutation in the brain.  It primarily affects girls (1 in every 10,000 girls develop Rett).  It strikes typically when a child is 6-18 months old, and it has the characteristics of ALS, autism, epilepsy, and Parkinson's...all rolled into one sinister disorder.  It takes away the child's ability to move and communicate. 

In essence, Rett does to a child what Lucy in the "Peanuts" comic strip does to Charlie Brown when he tries to kick the football that she is holding.  The only difference is that Charlie Brown can get back up to try again.  Those who are afflicted with Rett syndrome don't get another chance to enjoy a vibrant life.

Researchers are working to re-engineer the gene mutation that turns on Rett, so it can be forever turned off.  Four drug therapies are in the FDA review pipeline, with one (trofanitide) one level away from review.  And, iPad tablets with retinal scan technology are giving those with Rett a voice they haven't had since they were toddlers.

The full court press on Rett is paying off.  You can help keep the pressure on Rett, by going to my Rett Racers donation page:  https://rettracer.everydayhero.com/us/rett-gets-rocked-2020

Thanks for your time and consideration, and hopefully there will be basketball to play and broadcast at the start of 2021!

Jay Murry
Play-By-Play Announcer, Washington University in St. Louis
Event Director, Rett Gets Rocked 50K for $5K